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News Archive 04.12.13: A new draft UKPIN constitution for review and comment is available here. 22.09.13: UKPIN Meeting 2013 - Next Generation Thinking The draft programme has been uploaded onto this site here. 20.11.13: New revised minutes of the UKPIN Steering Group meeting of 12 April 2013 have been posted here. 30.07.13: The satellite registration site has now been restored. 22.07.13: The minutes of the UKPIN Steering Group meeting of the 15 March 2013 have been posted here. 23.05.13: UKPIN site temporary down; due to problems with the registration site and malware, we have removed the registration portion of the site temporarily. Apologies for the inconvenience. 15.04.13: The minutes of the UKPIN Steering Group meeting of 14 December 2012 have been posted here. 15.11.12: The minutes of the UKPIN Steering Group meeting of the 10 September 2012 have been posted here. 04.09.12: The minutes of the UKPIN Steering Group meeting of the 21 May 2012 have been posted here. 21.06.12: Mintues from the PIA patient support group have been posted online on the PIA Archive page. [ADDENDUM - the PIA Archive has now been removed from this site, see below.] 02.06.12: UKPIN is proud to present an online archive of the publications of the Primary Immunodeficiency Association (PIA) on its own site, here. [ADDENDUM - the PIA Archive has now been removed from this site; up-to-date patient representation can be found on the links pages.] 23.04.12: The minutes of UKPIN Steering Group Committee for both the 9 December 2011 and 2 March 2012 have been posted here. 06.12.11: The revised minutes of the UKPIN Steering Group meeting of the 29 September 2011 have been posted here. 20.11.11: Fifteenth Biennial Meeting of the European Society for Immunodeficiencies (ESID) ESID 2012 will gather over 3000 scientists and clinicians specializing in Primary Immunodeficiency Diseases. ESID 2012 offers an advanced scientific programme with a leading international faculty, new approaches to diagnosis and treatments, interactive discussions, opportunities for collaborative research, and networking events. For more details, click on the banner below.
17.10.11: UKPIN Position Statement The electronic copy of the UKPIN Position Statement on 'Immunoglobulin Product Choice for Patients with Primary Immunodeficiency' has been posted here. 17.10.11: Advances in Primary Immunodeficiency A Winter School run by the UCL Centre for Immunodeficiency. The UCL Centre for Immunodeficiency is running a three day residential course covering adaptive and innate primary immunodeficiency disease (PID), which will take place at Cumberland Lodge, the Great Park of Windsor, UK, from 12th – 14th March 2011. For more details, download the Word/PDF document below:
01.06.11: The details of the 2011 UKPIN Meeting have been posted here, and are all registration and further details are available on a satellite site here. 01.06.11: The UKPIN Annual Survey is now online here. 01.06.11: The minutes of the UKPIN Steering Committee from 11 March 2011 have been posted here. 23.03.11: Announcement of Symposium: 'Enhancing Immune Function'. The Fourth One-Day Symposium on Primary Immunodeficiency will be held on Thursday 26th May 2011 at the Kennedy Lecture Theatre, Institute of Child Health, UCL. For more information contact: Sue Ballard at [email protected] or Mahdia Sait at [email protected] Please find a programme, registration form and abstract form below.
18.01.11: Two 'Guidance for Patients with Hereditary or Acquired Angioedema' documents have been posted in the Standards of Care section: Managing Patients Presenting for Surgery, Bronchoscopy, Endoscopy, or Dental Treatment and Emergency Airway Guidelines. 23.12.10: Minutes of the UKPIN Steering Committe Meeting of 14 October 2010 are posted here. 18.11.10: Advances in Primary Immunodeficiency A Winter School run by the UCL Centre for Immunodeficiency. The UCL Centre for Immunodeficiency is running a three day residential course covering adaptive and innate primary immunodeficiency disease (PID), which will take place at Cumberland Lodge, the Great Park of Windsor, UK, from 28th February – 2nd March 2011. For more details, download the Word document below:
14.07.10: Information on the UKPID Registry added. 04.06.10: Core Documents Required for Accreditation list is now available on the How To Get Accredited page. 26.03.10: Minutes of the UKPIN Steering Committee meeting of 7th September 2009 have been posted on this site. 30.09.09: UKPIN have posted Position Statement on Swine ‘flu Vaccination as a PDF. [ADDENDUM, this has now been removed from this site.] 14.09.09: Minutes of the UKPIN Steering Committee meeting of June 2009 have been posted on this site. 01.07.09: The full programme of the UKPIN Immunology Forum 2009 is now online. 06.06.09: UKPIN is pleased to present the new UKPIN Standards of Care documents which represents the consensus of the UKPIN Standard of Care Group. These Standards of Care are for the diagnosis and management of the condition stated, for use by Immunologists and Immunology Specialist Nurses. The UKPIN Guidelines have been removed from this site and archived at the UKPIN Office. 06.06.09: The minutes of the UKPIN Steering Committee meeting of 29 January 2009 have been posted on this site. 30.04.09: Announcement: An article on the management of influenza-like illness during an influenza pandemic in patients with primary immunodeficiency disorders may be downloaded by clicking on the buttons below. [ADDENDUM, this has now been removed from this site.] 25.03.09: The dates of the 2009 UKPIN Forum have been announced. 28.01.09: UKPIN is conducting its first national audit of patient monitoring of CVID, click here for details. [ADDENDUM, this has now been removed from this site.] 22.10.08: The minutes of the UKPIN Steering Committee from May 2008 are available here. 13.05.08: The minutes of the UKPIN Steering Committee from January 2008 are available here. The UKPIN Constitution has been updated here. 14.02.08: The September 2007 minutes of the UKPIN Steering Group Committee are available here. 02.11.07: UKPIN is delighted to launch an online immunodeficiency diagnostic tool for non-specialists, based on the protocols developed by the clinical working party for the European Society for Immunodeficiences. Click on either 'diagnose' on the top menu, or in the box on the left of the above header to begin a diagnosis. 04.10.07: Minutes of the UKPIN Steering Committee from the 16 April 2007 are now online. 11.09.07: Full programme of the UKPIN Forum 2007 is now online. 30.06.07: Details of the UKPIN Forum 2007 in association with the British Society for Immunology have been posted. 25.02.07: New documentation forms for accredition, including Accreditation Standards Guide, Guidance for Assessors and Applicant Centres, Application Form and details on the Registration and Application Process have been uploaded onto the Accreditation pages. Guideline 21.08 for Home Therapy is now available. 26.01.07: Draft Guidlines 15.01 and 21.01 have been withdrawn. 21.12.06: Minutes from the UKPIN Steering Committee meeting of 11 December have been posted here. Additionally, the minutes of the Steering Committee meeting 11 September 2006 have been amended. 09.11.06: Minutes from the UKPIN Steering Committee meeting of 11 September 2006 have been posted here. 26.10.06: Minutes of the UKPIN Steering Committee of the 8th May 2006, have been amended. 27.07.06: List of steering committee members revised on the membership page. 12.06.06: Minutes of the Steering Committee meeting held in May 2006 are now approved and available online. Please click here. 25.05.06: Minutes of the Steering Committee meeting held in November 2005 are now approved and available online. Please click here. 05.07.05: UKPIN Constitution revised. 21.07.05: Guideline 21.07: Immunoglobulin home therapy training has been added to the draft guideline sections. [ADDENDUM, this has now been removed from this site.] UKPIN Steering Committee Minutes 04.07.05: Minutes of the June meeting of the UKPIN Steering Committee posted online. More details, click here. Membership Lists Online 16.06.05: Membership lists posted online. For more details, click here. UKPIN Forum 2005 12.05.05: Details of the 2005 UKPIN Immunology Forum were posted online, including draft programme of events, venue details, and a downloadable registration form. For more details, click here. ESID Database Proposal 18.04.05: The summary of the ESID database proposal posted online.
Steering Committee Minutes 11.03.05: The minutes of the UKPIN steering committee meeting from February 2005 are now available. For more details, click here. Database Security 23.02.05: Please note that the UKPIN membership database has been withdrawn temporarily, whilst a password-restricted method of access is set up. Apologies for the inconvenience caused. Site Changes 13.02.05: All new UKPIN news stories will now be posted on the homepage for immediate access. Previous news stories will are archived for reference purposes, whenever the news refreshes, the earlier items will also be archived. News of the Department of Health's International Recruitment Programme 05.11.04: The Department of Health have various schemes running to help and support NHS Trusts recruit hospital specialists from abroad. To facilitate this, Medical Recruitment Co-ordinator Lissa Perteghella’s role within the programme is to source suitable candidates from Spain, to be put forward for consultant vacancies in England and Wales. She acts a first contact between candidate and hospital with vacancy and can help arrange an informal visit if an AAC interview is likely. The Department of Health have published various guides for International Recruitment. The link below adheres to the current DH Code of Practice and provides advice regarding the infrastructure and support for international recruits eg: contracts, induction, mentorship, appraisal etc. http://www.dh.gov.uk/assetRoot/04/03/46/51/04034651.pdf Further links on this topic: DH
guide to HS & GP recruitment for NHS in England There
is also a fellowship scheme is also available: There
is more advice on Epinephrine for Home Therapy Statement 27.10.04: Following the recent Clinical and Experimental Immunology paper on the incidence of adverse IVIG infusion-related reactions during home therapy, the UKPIN Steering Group has agreed epinephrine is not required for all home therapy patients, but that individual centres can make decisions on this for individual patients. This statement is downloadable from the buttons below.
September Steering Committee Minutes Available 27.10.04: The minutes of the 28 September UKPIN Steering Committee have been posted on this site today. For more details, click here. Potential Viral Transmission Consent Notes Added 26.10.04: In addition to Guideline 4.01, entitled "Consent to Immunoglobulin Therapy", a leaflet to aid informed consent for patients have been added on "Potential Transmission of Infectious Agents". Direct links to the leaflet are available below, or for more details of the consent guideline and leaflet itself, click here. Nalinaj Fernando Memorial Award Available 11.08.04: The Nalinaj Fernando Memorial Award is an annual award of £350 presented to the corresponding author of the best research article into genetic immunodeficiency published in Clinical and Experimental Immunology each year. All submissions to the journal in this field are automatically entered for consideration. The editors of Clinical and Experimental Immunology welcome submissions for next year’s award (2004/2005) and information on manuscript submission can be found at: www.immunology.org/cei or by contacting the Managing Editor, Dr Cate Livingstone at [email protected]. Futher details can be obtained via the PDF below.
Draft Recurrent Skin Abscess Guideline 09.08.04: Guideline 20.01 - Diagnosis and management of recurrent skin abscesses - has been posted here. For other draft guidelines, click here. New Appointments to Steering Committee 26.05.04: Cilla Freud from the Royal Free Hospital has been appointed as a member of the UKPIN Steering Group, and Dr Dinakantha Kumararatne (Kumar) from Addenbrookes has been appointed as Treasurer and will officially take over from Tim Wallington in January 2005.For membership details, click here. C1 Inhibitor Deficiency: Draft Consensus Document 29.04.04: C1 Inhibitor Deficiency: Draft Consensus Document. This draft consensus has been posted on this site. Comments from interested parties are invited to go directly to [email protected]. It is hoped that an open forum for discussion of the proposals in the document will be held on 02.06.04 in London.
Four Draft Guidelines Posted 22.04.04: Four draft guidelines have been posted on this site, including 7.01 Diagnosis of CVID, 8.01 Management of CVID, 9.01 Diagnosis of XLA and 10.01 Management of XLA. For more details, click here. UKPIN Constitution 08.03.04: An approved version of the UKPIN Constitution is now online in PDF format on the homepage. For more details, click here. Bronchiectasis and Primary Antibody Deficiency 29.02.04: The talk 'Bronchiectasis and Primary Antibody Deficiency: UKPIN and BTS Guidelines', by Richard Herriot, Consultant Immunologist, Aberdeen Royal Infirmary, given at the UKPIN Forum on Saturday, 8th November 2003, is now able be downloaded from the archive of presentations page. For more details, click here. Diagnosis and Management of Complement Deficiency 25.02.04: New draft guideline, number 19.01, for diagnosis and management of complement deficiency has been added to the Draft Guidlines page. For more details, click here. Central Purchasing 14.02.04: The NHS Purchasing and Supply Agency contract for the national agreement for the supply of immunoglobulins is available here, in both PDF and Word formats.
UKPIN Newsletter Archive
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